A Pat on the Back, and some Goals

Things that it is important for me to remember I have overcome:

  • Mouth lesions (twice)
  • Dysesthia is better
  • I have commuting routine
  • Hand lesions are better
  • My eye lesions and eczema are stable and not too bad
  • I am making food for myself and O (the independence is huge)
  • The lesions in my nose are better, though not gone
  • My genital lesions are gone
  • I have not had any major homeless-person-style dysesthesia attack in the street since I returned to NYC
  • I am much better at regulating my body heat outside which helps the dysesthesia
  • I can go grocery shopping

Things that are happening that I am managing to get through:

  • I still have dysesthesia, though milder
  • I still have major itching on my extremeties, and my lower legs and forearms are covered in scabs
  • I still have major heat sensitivity
  • My body still aches if I don’t take Tylenol and advil every six hours
  • I have lesions in both of my ears, with painful scabs
  • My mouth is so dry and raw I am having trouble eating: last week I actually couldn’t get most food In or bite on a sandwich because of the pain, now it is just uncomfortable to do so
  • I am struggling with holding on to my libido

Things I seem to have avoided entirely:

  • I am not depressed
  • I have not lost my appetite (though I have lost much taste, and gained much weight)
  • I have remained phenomenally productive in the studio
  • I was able to finish my book

Goals:

  • I need to meditate more
  • I need to leave the studio earlier
  • I need to exercise (bike or pilates)
  • I need to be more emotionally present for O

Published by

admin

I am 30 year old Brooklynite who was diagnosed with Stage III Melanoma in February 2008. I started this blog after the first day of high dose Interferon chemotherapy in June 2008.

One thought on “A Pat on the Back, and some Goals”

  1. I am very proud of you! I remember when you thought some of the things on this list were nearly impossible, but you’ve done them… And you’ve rocked many of them! And you’ve also been spending a lot of extra energy doing things for me, lately. Especially since I am not as good a patient as you.

    In all the ways you list and more, you’re setting a good example, but really… It’s not about doing all this perfectly or doing all this better; it’s just about doing it and getting through it. Which you’re achieving admirably! Nonetheless, I like goals 1-3 because I’m really glad you’ve found these ways to improve your quality of life. (Of course #2 includes having a studio to go to and being able to leave it before you get too tired.)

    Kudos, dude!

Leave a Reply